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We invite you to engage in an interactive nintely minute roundtable led by EverythingALS consortia of Pharma partners, sensor companies, neurologists, data scientists, regulators and patients to help advance the discovery and implementation of ALS digital biomarkers in clinical trials through our collaborative efforts.
Joining our participatory roundtable, you will be the first to learn about our latest study results on ALS digital biomarkers as well as have the opportunity to hear why major pharmaceutical companies have joined the consortium to partner in EverythingALS research, which will be expanded to include analyzing data from wearables and smartphones.
As always, we approach each roundtable to encourage out-of-the-box thinking, and to kick it off, we have an exciting agenda! Take a look below.
This is an invite only event.
Hosts & Speakers

Agenda
Monday March 4th, 2024
12:30 PM - 2 PM ET I 9:30 AM - 11:00 AM PT
5 minutes
15 minutes
15 minutes
15 minutes
30 minutes
Welcome and Consortia Updates
Indu Navar
Keynote : Person living with ALS
Martha and Paul Beach will share with us the impact of ALS on family, and support and shared-decisions
Grant Opportunities with the ALS Research Programs
Sarah N. Fontaine
Will present the congressionally directed medical research programs, U.S. Army Medical Research and Development Command
EverythingALS Vision 2030 AI Research Hub
Merit Cudkowicz and Ernest Fraenkel
Vision: 2030: a First-of-its-Kind AI Research Hub in ALS
Panel: 'What It Takes'
Michelle Crouthamel, Lyle Ostrow, Ernest Fraenkel, David Shulman and Sarah N. Fontaine
"What It Takes": Making Digital Endpoints and Outcomes Foundational to Powered Studies in 2024 - Perspectives from Researchers, Clinicians, Industry and People with ALS

Agenda
Friday March 28th, 2025
11:30 AM - 1:00 PM ET I 8:30 AM - 10:00 AM PT
Welcome, Updates, and Announcements
Welcoming new consortia members.
Indu Navar, Founder & CEO, EverythingALS
Comments from the new Consortia members
Eric Green, Founder and CEO, Trace Neuroscience
Andreas Kalmes, Vice President of Drug Development, Revalesio
AI for Reliable ALSFRS-R Scoring: Reducing Variability in Clinical Trials
Dr. James Berry, MGH
SAVA AI -> EverythingALS Clinical Endpoint Tool
Dr. Lyle Ostrow, Temple Medicine and Sava Marinkov
Lou Warnett & David Master, Amazon Web Services
Reliable Monitoring of Respiratory Function & Progression Prediction using AI/ML
Demonstration of consortium participation link
Regeneron, Lily, BMS, EverythingALS Team & Scientific Advisors
Regulatory update DDT LOI filing
Citizen-Driven Trial Excellence (Preparedness)
EverythingALS team and Consortia
END OPEN SESSION
CONSORTIA MEMBERS' BREAKOUT
12:35 PM - 1:00 PM ET
Keynote: A Mother's Strength - Navigating Life with Her Son’s ALS
Faith Oremland
10 minutes
05 minutes
10 minutes
40 minutes
20 minutes
05 minutes
Next steps and Closing Remarks
Indu Navar, Founder & CEO, EverythingALS